Teddy had his first appointment with the Pediatric Neurologist. On physical examination she diagnosed him with Spastic Quadriplegia Cerebral Palsy and static encephalopathy. He also showed minimal reflex response. We have an appointment scheduled for an MRI in a week. I am not looking forward to that as he is not supposed to eat/drink anything after 5:30 AM. It will be around 1:00 PM until they are finished. We all know with a 10 month old, forbidding food or formula for that long will be a nightmare.
We also had to go back to the brace clinic to turn in his hand splint to get it modified. He only had the left hand splint and, due to the design, he acquired a sore on his thumb right at the top joint on the underside. This was caused by him keeping his thumb clenched. They are going to modify both the left and right hand splint so that his thumb barely peeks out.
Physical Therapy went well today. He got moody in the middle of therapy but he was in a different, much smaller room that hardly had any toys. We got more exercises to work on, one being standing on one foot. This will help strengthen his hip muscles. Children with his diagnosis are at a much greater risk of having hip dislocations.
I think prior to his neurology appointment I still had a glimmer of hope that he was diagnosed wrong. It would make things alot easier if his Daddy was home to help out but right now that is impossible.
We also had to go back to the brace clinic to turn in his hand splint to get it modified. He only had the left hand splint and, due to the design, he acquired a sore on his thumb right at the top joint on the underside. This was caused by him keeping his thumb clenched. They are going to modify both the left and right hand splint so that his thumb barely peeks out.
Physical Therapy went well today. He got moody in the middle of therapy but he was in a different, much smaller room that hardly had any toys. We got more exercises to work on, one being standing on one foot. This will help strengthen his hip muscles. Children with his diagnosis are at a much greater risk of having hip dislocations.
I think prior to his neurology appointment I still had a glimmer of hope that he was diagnosed wrong. It would make things alot easier if his Daddy was home to help out but right now that is impossible.
Hi there,
ReplyDeleteI navigated here from Cerebral Palsy Baby. My daughter is 4, and has spastic diplegia (formally diagnosed at 14 months, MRI 15 months). She's doing well--we are working on walking (but we have been for some time).
I don't know what it's like parenting when your husband is away for a long time...I imagine this is very difficult. Wishing you patience, encouragement, and to your husband, a safe journey home.